Top 5 things driving me crazy about cancer (right now)

  1. Being asked, "How are you?" I know everyone means well, and I'd say the same thing if it were you, but this is a question I am constantly asked. I look forward to a time when someone can comfortably joke, "What up, shit head?"

  2. Being treated like a patient by my friends or family. It's OK, I really can fetch my own glass of water. I don't need help standing up. I can bend and pick up that thing I just dropped. I can walk up the stairs without assistance. Things I do want help with: walking in the dark without my glasses and going down stairs.

  3. Reading things that say, "Getting diagnosed with cancer is one of the most traumatic things you and your family will experience. Questions like, Why me? and How could I have prevented this? are common, but you can't blame yourself." Are you kidding me? I think that stuff would make people feel worse.

  4. Getting offered wigs. Don't get me wrong, I think it's fantastic there any many organizations helping women get wigs when they lose their hair during treatment. But I haven't lost any hair yet; I just shaved it off for, you guessed it, brain surgery! Either way, if I do lose hair I will rock the bald like nobody's business.

  5. Making payments on a car I haven't driven in seven months.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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