Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
They let me take a picture in the MRI
So here I am laying on the table before I go into the MRI. After this point the bed moves up and into the round tube. If you have had a brain MRI before then you know what I'm talking about.
“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."
I said, “This may sound creepy, but I have a photo of my incision two weeks after surgery while the stitches are still in it. It's on the Internet, I could show you.”
“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."