“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."

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My sutures after my first craniotomy.

Today I saw a neurosurgeon and an epileptologist to get a second opinion about my second craniotomy.

I wasn’t changing my mind about my current neurosurgeon; rather, I got more questions answered and now feel even more confident in what will happen next.

I was proud of myself at this appointment because it was the first time I asked about 95% of the questions (as opposed to Uncle Bob and I trading questions 50-50).

Before my first surgery I had no idea what this whole “cancer business” was all about, but now I am more educated—about cancer and about asking questions.

Today I was a total badass

The neurosurgeon asked about my previous surgery. He was having trouble looking for my scar, which hidden by my hair.

I said, “This may sound creepy, but I have a photo of my incision two weeks after surgery while the stitches are still in it. It's on the Internet, I could show you.”

“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."

Good one, doctor. Good one.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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