Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

 

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

Liz Salmi Liz Salmi

Note to self: Preparing for 4th Brain Surgery

If it’s too hard to use your right hand, use your left. If it feels really hard today, you are making progress for tomorrow (it gets better and you get stronger). Don’t be sad at what you lost, because you are rebuilding, always becoming something greater than before.

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Newly Diagnosed, 2009 Liz Salmi Newly Diagnosed, 2009 Liz Salmi

“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."

I said, “This may sound creepy, but I have a photo of my incision two weeks after surgery while the stitches are still in it. It's on the Internet, I could show you.”

“Creepy? I'm a neurosurgeon, it's my job to look at this stuff. The fact that you have it on the Internet is what's scary."

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