Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Thinking of you
The smell of your bathroom soap triggers memories of every hospitalized experience I've had in the past year.
Email from the neuro-hospitalist
Your personal involvement and commitment to your illness and care are remarkable. Keep up this level of interest and enthusiasm to be sure that you optimize your care! ... Great to see you and I wish you all the best!
Post-operative rock out
This is 36 hours hours after brain surgery. I taped this as a nurse was changing the sheets in my bed.