Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
How the rest of the medical community deals with cancer
My primary care doctor sent me to see a new physical therapist for a back muscle injury. The therapist looked at my medical chart. Then he looked up at me. Then back to my medical chart. Then to me.
What are your post-brain surgery deficits?
My right-side balance and knowledge of where my body is space is so out of whack that I can't put my leg behind my body and just KNOW WHERE IT IS.
Why didn't anyone tell me how I would feel?
Chemotherapy week was not so bad. I experienced mild nausea Monday through Thursday, but life sucked Friday and Saturday, and I was still nauseated on Sunday.