Last night I sent this message to the 12 clinicians listed in my MyChart.
Dear Dr. ______,
Since you are a clinician involved with my care I’d like to give you an update about my medical condition.
On 1/16/09 I had a three-month, post-operative MRI and learned that my brain tumor has continued to grow. I will have a second craniotomy on 2/16/09. After surgery I begin radiation and chemotherapy.
Take care!
Liz
Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.
